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weiss jemand, wie weit die Entwicklung bezüglich Mitochondrienfehlfunktion bei CFS/ME ist (hab die letzten Infos von Februar 2007 gefunden) und ob in der Schweiz entsprechende Untersuchunge durchgeführt werden?
Danke für Antworten
Hi you are joining the group at a time that could be quite confusing for the uninitiated. There are moves a foot to redefine ME in the US to a new disease named SEID. This had not yet been accepted in the US and is not even under consideration elsewhere. But there are many fears that if it is accepted in the US, it could very soon spread over here like CFS did 20 years ago. In our view SEID does not share the same symptoms as real ME and we fear that real research for ME may be lost. I just thought I should point that out you because it is a hot subject of debate in the group.
Yes and no ? yes we want to retain Ramsay's definition of ME and at the start of this long IOM process in the US, we backed the 50 ME experts proposal to adopt the CCC but that offer was made with the condition that the 11 year old CCC would soon be upgraded to the ICC. Which is a more appropriate version if the CCC with the benefit of hindsight.
Du könntest den Link zu dem/den FB-Beiträgen hier verlinken, soweit diese "öffentlich" sind - so kann auch jemand die FB-Beiträge lesen ohne FB-Konto; Bei jedem FB-Beitrag sieht man ein Datum bzw Uhrzeit - mit dem Maus-Zeiger darüber und den Link darauf mit Rechts-Klick in die Zwischenablage kopieren...... auf FB verlinkt. Wo könnte man das hier weiterleiten?
Zu diesem Thema gibt es einen Thread: Neuer Name CFidS/ME: SEID (system. Anstrengungsunverträglichkeit)... wie steht man hier zu dieser Diskussion:...
Just linking a post from the Open Group - These 3 papers form a portion of a bundle of approximately 40 papers, all from the last 6 years, which I am compiling, personally, along with a detailed letter which will be submitted to a very senior UK politician [who has agreed to act for me in this way] after the General Election and thereafter passed to whosoever is the Health Secretary with a view to challenging the status quo re NICE guidelines in the UK. CR https://www.facebook.com/groups/108048875899603/permalink/807261272645023/